Watching this video only offers us a small glimpse of what this little girl goes through on a daily basis. I can’t imagine the degree of pain she feels because of the rare skin disorder she suffers from. It’s called Epidermolysis Bullosa (EB), a skin condition that causes the skin to blister, then tear easily. The worst part is that once the skin tears it becomes a third degree burn. The girl in this video is named Sohana Collins and she’s only 12 years old in this video, but it’s obvious that she’s a fighter despite the severity of her condition.
According to the Mayo Clinic, “Epidermolysis bullosa has no cure, though mild forms may improve with age. Treatment focuses on addressing the symptoms โ such as infection and itching โ and preventing pain and wounds. Severe forms may cause serious complications and can be fatal.” Most cases of EB are inherited just like in Collins’ situation.
Here at SF Globe, our hearts were pained to see the amount of difficulty Collins goes through every day, but we loved seeing celebrities coming together to support the cause for Collins’ research. We hope you are just as moved by this video as we were. Don’t forget to tell us what you think in the comments below after watching!